Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies

Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies

Instructors: Nancy Hodgson, PhD, RN, FAAN

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5 modules

Gain insight into a topic and learn the fundamentals.

321 reviews

Beginner level

No prior experience required

Flexible schedule

2 weeks at 10 hours a week

Learn at your own pace

94%

Most learners liked this course

5 modules

Gain insight into a topic and learn the fundamentals.

321 reviews

Beginner level

No prior experience required

Flexible schedule

2 weeks at 10 hours a week

Learn at your own pace

94%

Most learners liked this course

Skills you'll gain

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Assessments

8 assignments¹

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Taught in English

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There are 5 modules in this course

Health professionals and students, family caregivers, friends of and affected individuals, and others interested in learning about dementia and quality care will benefit from completing the course. Led by Drs. Nancy Hodgson and Laura Gitlin, participants will acquire foundational knowledge in the care of persons with Alzheimer’s Disease and other neurocognitive disorders.

In this module, we introduce learners to dementia. We present a socio-ecological framework for understanding the live experience of dementia and by which this course is organized. We discuss the global impact, pathophysiology, and stages of dementia.

What's included

6 videos11 readings2 assignments1 peer review

6 videosTotal 49 minutes

Living with Dementia: Course Introduction4 minutes
Module 1 Introduction1 minute
Alzheimer’s Disease A Brief History7 minutes
Dementia-The Challenge of Diagnosis6 minutes
New Approaches to the Diagnosis of Alzheimer's Disease11 minutes
Global Impact of Dementia21 minutes

11 readingsTotal 110 minutes

History of Alois Alzheimer10 minutes
World Health Organization Dementia Fact Sheet10 minutes
The Pathophysiology of Alzheimer's Disease and Directions in Treatment (OPTIONAL)10 minutes
Inside the Brain: Unraveling the mystery of Alzheimer's disease (YouTube) (OPTIONAL)10 minutes
Alzheimer's Disease International: Diagnosis10 minutes
Alzheimer's Association: Recommendation to update diagnostic criteria10 minutes
The diagnosis of dementia due to Alzheimer’s disease: Recommendations from the National Institute on Aging-Alzheimer’s Association workgroups on diagnostic guidelines for Alzheimer's disease (OPTIONAL)10 minutes
Recommendations for the Diagnosis and Management of Alzheimer's Disease and Other Disorders Associated with Dementia: EFNS guideline (OPTIONAL)10 minutes
2009 World Alzheimer Report Executive Summary10 minutes
Dementia: International Comparisons (OPTIONAL)10 minutes
Dementia Care in 9 OECD Countries: A Comparative analysis (OPTIONAL)10 minutes

2 assignmentsTotal 60 minutes

Week 1 Quiz30 minutes
Myth Buster Quiz30 minutes

1 peer reviewTotal 120 minutes

Dementia Rates in your Community120 minutes

In this module, we focus on the impact of dementia for individuals. You will learn about common unmet needs of persons with dementia as well as the impact of core clinical features such as behavioral and psychological symptoms. Also, you will learn ways to support quality of life of a person with dementia.

What's included

7 videos10 readings1 discussion prompt

7 videosTotal 130 minutes

Module 2 Introduction1 minute
Personhood7 minutes
Potential Interventions Across the Disease Trajectory18 minutes
Identifying and Treating Behavioral Symptoms in Dementia33 minutes
Support the Person with Dementia: The Role of Meaningful Activities29 minutes
Palliative Care to Manage End Stage Dementia: A Patient-centered approach25 minutes
Medication Use in Dementia Care18 minutes

10 readingsTotal 100 minutes

Personhood10 minutes
Personhood in a World of Forgetfulness: An Ethnography of the Self-Process Among Alzheimer's Patients (OPTIONAL)10 minutes
Managing Behavioral Symptoms in Dementia Using Nonpharmacologic Approaches: An Overview10 minutes
Activities10 minutes
International Perspectives on Nonpharmacological Best Practices for Dementia Family Caregivers: A Review (OPTIONAL)10 minutes
Dementia: a public health priority (OPTIONAL)10 minutes
Importance of national plans for Alzheimer’s disease and dementia (OPTIONAL)10 minutes
Late-Stage Caregiving10 minutes
Alzheimer's Disease: Help for Caregivers10 minutes
Hospice Care for Alzheimer's10 minutes

1 discussion promptTotal 10 minutes

Unmet Needs10 minutes

In this module, we expand our lens to consider family caregivers’ needs. You will learn the psychosocial impact of caring for a person with dementia and the role of stress. We provide examples of how to reduce stress, use the physical environment to support care tasks and well-being, and examine the potential role of technologies to improve dementia care.

What's included

7 videos12 readings2 assignments

7 videosTotal 122 minutes

Module 3 Introduction1 minute
Living with Dementia as a Family Caregiver23 minutes
Psychosocial Processes in Families Managing Dementia: The Stress response20 minutes
Using the Physical Environment to Support Quality of Life: Psychosocial environmental processese28 minutes
Home Safety - Part 115 minutes
Home Safety - Part 220 minutes
Summary and Future Challenges: The Role of Technology16 minutes

12 readingsTotal 120 minutes

Caring for a person with dementia10 minutes
Dementia with Agitation (YouTube video)10 minutes
Rabins on Research: Is Alzheimer’s disease genetic? Do my children have to worry? (OPTIONAL)10 minutes
Late stage dementia home care: a caregiver from India shares her experiences (YouTube) (OPTIONAL)10 minutes
Extended Interview with Alzheimer's Caregiver, Ric Gomez (YouTube) (OPTIONAL)10 minutes
Stress Process Model for Individuals With Dementia10 minutes
Impact of the disease (OPTIONAL)10 minutes
Cultural Values and Caregiving: The Updated Sociocultural Stress and Coping Model (OPTIONAL)10 minutes
Correlates of quality of life for individuals with dementia living at home: the role of home environment, caregiver, and patient-related characteristics10 minutes
World Alzheimer Report 2013 Journey of Caring (OPTIONAL)10 minutes
Environmental Perspectives on Ageing10 minutes
Assistive technology - devices to help with everyday living10 minutes

2 assignmentsTotal 60 minutes

Case Study Quiz30 minutes
Environmental Safety Checklist Assignment30 minutes

ln this module, we examine the community level. We discuss how the interprofessional team plays a key role in providing comprehensive dementia care. Also, we examine the concept of dementia-friendly communities and provide some examples from around the world.

What's included

4 videos5 readings2 assignments1 discussion prompt

4 videosTotal 60 minutes

Module 4 Introduction1 minute
Assessing the Role of the Home and Community Environment in Supporting Families Living with Dementia14 minutes
Dementia Friendly Communities13 minutes
Using an Interprofessional Approach to Dementia Care32 minutes

5 readingsTotal 50 minutes

Improving Quality of Life in Individuals with Dementia: The Role of Nonpharmacologic Approaches in Rehabilitation10 minutes
List of Alzheimer associations10 minutes
8 Pillars Model of Community Support (OPTIONAL)10 minutes
Dementia Care & Support (OPTIONAL)10 minutes
Dementia care in developing countries: The road ahead (OPTIONAL)10 minutes

2 assignmentsTotal 60 minutes

Dementia Friendly Community Checklist Assignment30 minutes
IPE Quiz30 minutes

1 discussion promptTotal 10 minutes

Health care team particpation10 minutes

In this module, we provide an overview of national plans and policies. We identify elements of key plans and review the impact of such plans from a global perspective. You will also have the opportunity to develop an action plan that addresses an unmet need that you identify either in your home, community, or place of work.

What's included

4 videos2 assignments1 discussion prompt

Instructors

Instructor ratings

(84 ratings)

Nancy Hodgson, PhD, RN, FAAN

Johns Hopkins University

1 Course23,415 learners

Laura N. Gitlin, PhD

Johns Hopkins University

1 Course23,415 learners

Offered by

Johns Hopkins University

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Reviewed on Sep 14, 2019

A multidimensional look at community support for dementia. With the growing number in dementia, families and communities need to be more focused on including the person with dementia. Good learning.

Reviewed on Apr 1, 2023

Give me all the knowledge about dementia, good for people who know nothing about dementia.

Reviewed on Jul 9, 2022

Learned valuable information about Dementia care. Take away info and strategies to implement in both aging family home as well as greater community/clinical settings.

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